New Delhi, Jan 5 (IANS) The city government has informed the Delhi High Court that it does not have any policy on providing "prolonged or life-long treatment" for patient with rare genetic disorder claiming free of cost treatment.
Filing an affidavit before the court, the government also said that the Delhi government has allocated 10 percent of its budget towards health which is highest in the country.
An affidavit filed by the Lok Nayak Jayaprakash Hospital in response to a plea seeking free treatment for minor Afreen Ansari, suffering from genetic disorder Turner's syndrome, said the hospital does not have any policy on providing prolonged or life-long treatment for patient with rare genetic disorder, "however, such patients are treated on a case to case basis with financial assistance available from several sources".
Ansari, a class 7 student, was diagnosed with the syndrome which affects growth and leaves the victim prone to various diseases, over two years ago and has been under treatment since then at the hospital. While there is no definite treatment for disease, on the advice of experts and doctors at LNJP hospital, the child was given a trial of growth hormone therapy.
The child has to be given growth hormone injections, which cost around Rs.15,000 per month, over a period of three to four years.
As Ansari's father, works as a tailor in Trilokpuri area of east Delhi, hardly earns around Rs 7,500 per month and has no means to purchase the prescribed injections, she had received a sum of Rs.50,000 as financial assistance from Prime Minister's national relief fund and another a sum of Rs.1 lakh from the health minister's discretionary grant last year.
But the financial assistance can sustain the treatment which primarily includes growth hormones - a non-scheduled drug - only till the "next few more weeks", the LNJP hospital said.
"Till date we have already provided her treatment with growth hormone utilizing the available funds and we still have about Rs.55,000 as balance for which we will be able to provide her treatment for a few more weeks," the hospital said.
"Subsequently treatment of patients will depend upon the availability of more financial assistance for the drugs or as per policy that would be decided by the Delhi government," it said.
Noting the Delhi government has allocated 10 percent of its budget towards health, it said: "Despite having only one percent of the population of the country, it is spending four times on health, calculated on a pro-rata basis, compared to other states. 30-40 percent footfall of patients in Delhi government hospitals is from other states."
The price of Bharat Biotech's intranasal corona vaccine INCOVACC, given through the nose, has bee
Tibetan leader to woo the young in US
Dharamsala, March 9 (IANS) The 17th Tibetan Karmapa, Ogyen Trinley Dorje, will visit the US wher
BCCI on Thursday announced the team for the South Africa tour. Three captains have been made for
There is no sign of an end to the war between Russia and Ukraine. It is now reported that Russia
Congress releases first list of Delhi candidates
New Delhi, Jan 1 (IANS) The Congress Thursday released its first list of candidates for the fort
The condition of China, which is facing the brunt of Coronavirus, is getting worse day by day. Ev
Due to continuous heavy rains in many states of the country, there is a bad situation. Common lif
Ukraine war: how much the world is dependent on Russia's gas and oil
The US and the European Union have agreed on an agreement to supply liquefied natural gas.
<India, Pakistan to celebrate richness of Urdu in Delhi
New Delhi, Feb 27 (IANS) Indian and Pakistani writers Intizar Hussain, Javed Akhtar, Ashok Vajp
Army Chief Naravane leaves for the Jammu tour for two days, will take check of security situation
Jammu Kashmir News: Army Chief General MM Naravane today left for a two-day tour of the Jammu reg
